You are invited to participate in a survey on the attitudes and experiences of Bickfaya residents with regards to waste management and the community. The answers will be analyzed by researchers at Stanford University and the University of Gothenburg to understand how best to improve the waste management system in Bickfaya. The survey takes roughly 15 minutes.
There are no risks associated with this study, although you may enjoy providing valuable information to improve Bickfaya’s environment. We will offer you a gift of reusable shopping bags if you choose to participate in the survey. We cannot promise that you will receive other benefits from this study.
Please understand your participation is voluntary and you have the right to discontinue participation at any time without penalty. You may skip any question. The confidentiality of your information will be maintained, and the researchers will not have any identifiable information about you.
During the study, data pertaining to your participation in the study will be generated and recorded. In addition, we will collect from you your personal data and sensitive personal data, including health-related data. We refer to all such data as “Your Study Data,” which will be specifically regulated in the EU/EEA under the General Data Protection Regulation (the “GDPR”). Your Study Data may be processed or used for the following purposes, which we refer to, collectively, as “Data Processing”:
– to carry out the study;
– to confirm the accuracy of the study; and
– to monitor that the study complies with applicable laws as well as best practices developed by the research community.
The following entities and organizations may engage in Data Processing of Your Study Data:
– the study team, and
– the ethics committee or institutional review board that approved this study; and
We may conduct the study in the United States or in other countries where the laws do not protect your privacy to the same extent as the laws in your country of residence. In addition, we may disclose Your Study Data for Data Processing to entities and individuals located in the United States or in other countries where the laws do not protect your privacy to the same extent as the laws in your country of residence. However, all reasonable steps will be taken to protect your privacy in accordance with the applicable data protection laws.
The study team at Stanford University takes part in the EU-U.S. Privacy Shield Framework. According to European Commission Implementing Decision (EU) 2016/1250, the EU-U.S. Privacy Shield provides an adequate level of protection for Your Study Data. (See, https://www.privacyshield.gov/list)
The GDPR gives you certain rights with regard to Your Study Data. You have the right to request access to, or rectification or erasure of, Your Study Data. You also have the right to object to or restrict our Data Processing of Your Study Data. Finally, you have a right to request that we move, copy or transfer Your Study Data to another organization. In order to make any such requests, please contact Salma Mousa at firstname.lastname@example.org or Kristen Kao at email@example.com.
There is no limit on the length of time we will keep Your Study Data for this research because it may be analyzed for many years. We will also retain your Study Data to comply with our legal and regulatory requirements. We will keep it as long as it is useful, unless you decide you no longer want to take part. You are allowing access to this information indefinitely as long as you do not withdraw your consent.
You may withdraw your consent at any time. If you withdraw your consent, this will not affect the lawfulness or our collecting, use and sharing of Your Study Data up to the point in time that you withdraw your consent. Even if you withdraw your consent, we may still use Your Study Data that has been anonymized so that the data no longer identifies you. In addition, we may use and share Your Study Data that has been pseudonymized (by removal of your name and certain other identifiers so that the data does not directly identify you) as permitted by applicable law for purposes of: (a) public health (e.g., ensuring high standards quality and safety of health care and/or of medicinal products or medical devices), (b) scientific or historical research or statistical analysis as permitted by applicable European Union or European Union Member State laws and (c) archiving in the public interest. Further, we will maintain Your Study Data in fully identifiable form if required by law.
We very much appreciate your participation which will help us and your municipality to understand how to improve waste management in Bickfaya!